KFF Health News reporting revealed HHS under Kennedy sought federal access to most Americans' identifiable medical records
Reporting published June 4, 2026 by KFF Health News revealed that the U.S. Department of Health and Human Services, under Secretary Robert F. Kennedy Jr., is seeking federal government access to the identifiable medical records of most Americans to research a rejected link between vaccines and autism. HHS officials met repeatedly with state health-information-exchange leaders about obtaining detailed patient records, backing a proposal for the department to receive data covering 90% of the population by 2028. An HHS spokesperson declined to say how many states are participating, what data is collected, or how patient privacy would be protected.
Actors
On June 4, 2026, KFF Health News reported that the U.S. Department of Health and Human Services, under Secretary Robert F. Kennedy Jr., is seeking federal government access to the identifiable medical records of most Americans as part of an effort to investigate a link between vaccines and autism — a connection the medical establishment has studied for decades and rejects. According to the reporting, federal officials met several times over the past year with leaders of state-run health information exchanges, the systems that let hospitals and clinics share detailed, patient-identifiable records such as doctors' notes, prescription histories, and diagnoses, and asked how those records could be used for vaccine research.
Kennedy told KFF Health News that medical records are key to investigating the causes of autism and chronic disease, saying "we now have databases together that we can actually do the studies on." State exchange leaders had pitched HHS on a new surveillance system that, under the proposal, would give the department data covering roughly 90% of the population's medical records by 2028. Millions of dollars in grant money flowed to a Nebraska nonprofit that assisted the effort. Some state officials declined to participate — Maryland's exchange said sharing records for that purpose would require a cascade of approvals it did not have — while others, including Indiana, said they were still weighing the request.
HHS spokesperson Emily Hilliard did not answer questions about how many states are participating, what data the agency is collecting, how much the initiative costs, how it protects patient privacy, or who would have access, saying only that HHS was "strengthening public health surveillance." The abuse recorded here is the government's pursuit of population-scale access to identifiable personal health records without disclosed legal authority or privacy safeguards, directed toward a scientifically rejected inquiry.
Why we recorded this
Freedom from improper government collection of personal data protects people from having their most sensitive records assembled and examined by the state without their knowledge or clear legal safeguards. Reporting revealed that HHS, under Secretary Kennedy, sought population-scale access to Americans' identifiable medical records — doctors' notes, prescriptions, and diagnoses — through state health-information-exchange systems, with a stated goal of covering 90% of the population by 2028 and no disclosed privacy protections. This archive records improper collection of personal data because centralizing identifiable health records in federal hands, for a politically directed inquiry the agency would not describe in detail, erodes the privacy safeguards that keep government data-gathering tethered to lawful and legitimate need.
Sources
- RFK Jr. Seeks To Peek at Americans' Medical Records for Clues on Autism and Vaccines — KFF Health News primary accessed July 8, 2026
- RFK Jr. seeks to peek at Americans' medical records for clues on autism and vaccines — CNN secondary accessed July 8, 2026
See also
- HHS created new pathway to share TANF recipients' Social Security numbers and immigration status with DHS
- CMS published Medicaid work-requirement rule with surprise medical-frailty certification mandate, blindsiding states
- HHS canceled Teen Pregnancy Prevention Program grants, redirected $67M to 'parental rights' and 'body literacy' competitions
- Former Coffee County, Ga. deputy Chris Ashley Rozar indicted on 8 counts for Flock, GCIC database misuse and stalking
- Bloomberg investigation revealed DOJ subpoenaed X for an anonymous ICE critic's identity, address, and banking data
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